Ein neuer Förderverein soll in Hessen die Versorgung von Patienten mit seltenen Erkrankungen verbessern. Was die ersten Projekte sind und warum Hilfe dringend nötig ist.
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Für Pharmaindustrie sind seltene Erkrankungen uninteressant
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Fehlende Therapien und Diskussionen mit den Krankenkassen
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